Primary Investigator:
Katherine Tuttle, MD

Description:

This study will be conducted at multiple centers including PMRC. The purpose of this study is to collect information and gain knowledge about a kidney disease called nephrotic syndrome (NS).  Individuals with NS will be asked to provide basic health information, blood & urine samples, nail clippings and to undergo a kidney biopsy. The information gathered will be used for future studies in NS.

Eligibility:

• New diagnosis of certain types of kidney diseases (FSGS, MCD, MN, OG)
• Nephrotic syndrome
• A plan for a kidney biopsy recommended by their local nephrologist
• Urinary protein excretion of at least 500 mg/24 hours within 3 months of enrollment
• Please contact study coordinator for more information about whether you qualify for this study.

Exclusions:

• Prior organ transplant
• Systemic lupus erythematosus
• Certain other kidney diseases
• There may be other conditions that could keep you from being in this study. Please contact study coordinator.

Study Timeline:
Currently Enrolling

Study Contact:
Ruthie Franks, RN, CCRC ruth.franks@providence.org

Study Sponsor:
This study is sponsored by the National Institutes of Health (NIH)/National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), Office of Rare Diseases Research (ORDR), the NephCure Foundation and the University of Michigan.